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Inspire

Inspire (http://corp.inspire.com) is a Princeton, NJ-based company that builds online peer-to-peer communities for patients and caregivers, in partnership with national patient advocacy organizations, and helps life science organizations connect with these highly engaged populations. Find us on Twitter at https://twitter.com/teaminspire.
Jul 28 '14

oncologytube:

Jeffrey N. Weitzel, MD, Best of the Day from the 2009 American Society of Clinical Oncology Breast Cancer Symposium

Jul 28 '14
agirlcalledcaptain:

jekabeth:

I need this kind of stuff right now. So sick and so tired of feeling sick and tired of feeling bad for feeling sick. :(

Needed to see this tonight.

agirlcalledcaptain:

jekabeth:

I need this kind of stuff right now. So sick and so tired of feeling sick and tired of feeling bad for feeling sick. :(

Needed to see this tonight.

(Source: pleasestopbeingsad)

Jul 28 '14
actuallyintroverted:

To those suffering from chronic illnesses, “But you don’t look sick” is one of the most invalidating comments you could make. It may be intended as a compliment, but ultimately this statement questions how sick a person could be based on their physical appearance - If you do not look sick, then you cannot possibly be as sick as you say. Your assurance does not make the illness go away; it does not make it any easier to be sick. So, instead of questioning the illness, offer support to your friend/family member/coworker and let them know that they don’t have to go at it alone.

actuallyintroverted:

To those suffering from chronic illnesses, “But you don’t look sick” is one of the most invalidating comments you could make. It may be intended as a compliment, but ultimately this statement questions how sick a person could be based on their physical appearance - If you do not look sick, then you cannot possibly be as sick as you say. Your assurance does not make the illness go away; it does not make it any easier to be sick. So, instead of questioning the illness, offer support to your friend/family member/coworker and let them know that they don’t have to go at it alone.

Jul 28 '14
allianceforlupusresearch:

Diagnosing a person with lupus can be a long and very difficult process for many people with the disease. In our recent Lupus Research Update, we spoke with Dr. Alana Levine about her approach to diagnosing and treating people with lupus. Dr. Levine is a rheumatologist at the Hospital for Special Surgery (HSS) in New York City, and as a clinician, Dr. Levine references the research that has propelled treatment for those with lupus, and specifically notes work by colleagues at HSS and ALR-funded researchers Drs. Mary K. Crow and Jane Salmon. Please click here to listen to a podcast with Dr. Levine and learn about her approach to Diagnosing Lupus: http://bit.ly/VoicesofLupus*This podcast is meant to be informational and any individual who is being treated for lupus should consult their healthcare provider to determine the therapy that is right for them.

allianceforlupusresearch:

Diagnosing a person with lupus can be a long and very difficult process for many people with the disease. In our recent Lupus Research Update, we spoke with Dr. Alana Levine about her approach to diagnosing and treating people with lupus. Dr. Levine is a rheumatologist at the Hospital for Special Surgery (HSS) in New York City, and as a clinician, Dr. Levine references the research that has propelled treatment for those with lupus, and specifically notes work by colleagues at HSS and ALR-funded researchers Drs. Mary K. Crow and Jane Salmon. 

Please click here to listen to a podcast with Dr. Levine and learn about her approach to Diagnosing Lupus: http://bit.ly/VoicesofLupus

*This podcast is meant to be informational and any individual who is being treated for lupus should consult their healthcare provider to determine the therapy that is right for them.

Jul 28 '14
stephbethwelch:

Because, truth. Www.Facebook.Com/mrswelcheswarriors #spoonie #chronicillness

stephbethwelch:

Because, truth. Www.Facebook.Com/mrswelcheswarriors #spoonie #chronicillness

Jul 27 '14
Jul 27 '14
Kendra Gottsleben’s life is defined by her positive outlook and success in overcoming obstacles, not MPS - the rare genetic condition she was born with. She is a 2010 Augustana College graduate with a bachelor’s degree in sociology and psychology. http://kendragottsleben.com #diabilityrights #raredisease #rarePOV #MPS #Mucopolysaccharidosis #disabilityadvocate #epatient #MaroteauxLamy

Kendra Gottsleben’s life is defined by her positive outlook and success in overcoming obstacles, not MPS - the rare genetic condition she was born with. She is a 2010 Augustana College graduate with a bachelor’s degree in sociology and psychology. http://kendragottsleben.com #diabilityrights #raredisease #rarePOV #MPS #Mucopolysaccharidosis #disabilityadvocate #epatient #MaroteauxLamy

Jul 26 '14
Julie Flygare, JD is the founder of Project Sleep, a leading narcolepsy spokesperson, published author, blogger and runner diagnosed with narcolepsy and cataplexy in 2007. Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students. http://julieflygare.com #narcolepsy #cataplexy #narcolepsyawareness #narcolepsysupport #epatient #sleepresearch

Julie Flygare, JD is the founder of Project Sleep, a leading narcolepsy spokesperson, published author, blogger and runner diagnosed with narcolepsy and cataplexy in 2007. Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students. http://julieflygare.com #narcolepsy #cataplexy #narcolepsyawareness #narcolepsysupport #epatient #sleepresearch

Jul 25 '14
Jul 25 '14
Tags: cancer