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Inspire

Inspire (http://corp.inspire.com) is a Princeton, NJ-based company that builds online peer-to-peer communities for patients and caregivers, in partnership with national patient advocacy organizations, and helps life science organizations connect with these highly engaged populations. Find us on Twitter at https://twitter.com/teaminspire.
Oct 20 '14
Dawn McCoy’s research and questioning of doctors led to a definitive diagnosis for her son, Joshua, when he was about 18 months old. Joshua has eosinophilic esophagitis, a chronic immune system disease that leads to inflammation of the esophagus. Read about her advocacy work in this recent article: http://www.timesdispatch.com/entertainment-life/columnists-blogs/stacy-hawkins-adams/life-notes-parents-advocating-for-children-makes-a-difference/article_531505af-8cf6-5f16-9afb-33805ab4f00e.html. #raredisease #raredisorder #epatient #caregiver #eosinophilicesophagitis #autoimmunedisease #esophagus

Dawn McCoy’s research and questioning of doctors led to a definitive diagnosis for her son, Joshua, when he was about 18 months old. Joshua has eosinophilic esophagitis, a chronic immune system disease that leads to inflammation of the esophagus. Read about her advocacy work in this recent article: http://www.timesdispatch.com/entertainment-life/columnists-blogs/stacy-hawkins-adams/life-notes-parents-advocating-for-children-makes-a-difference/article_531505af-8cf6-5f16-9afb-33805ab4f00e.html. #raredisease #raredisorder #epatient #caregiver #eosinophilicesophagitis #autoimmunedisease #esophagus

Oct 20 '14
Oct 20 '14
positivity-in-pain:

k-o-colitis:

This is so my luck.

#SpooniesLaw: Where anything that can hurt, will.

positivity-in-pain:

k-o-colitis:

This is so my luck.

#SpooniesLaw: Where anything that can hurt, will.

Oct 20 '14

ms-demeanor:

I made a comic about what it feels like (to me) to cope with having an invisible illness and the judgements and accusations that sometimes come with invisible illnesses.

I did it in green ‘cause that’s the color of the Celiac Awareness ribbon Celiac is one of the “imaginary” “all in your head” “stupid” “hypochondriac” invisible illnesses I live with.

So here. Be nice to people in general, because it’s the right thing to do, but if you can’t at least do that then please don’t be an asshole when someone tells you that they have Lupus or Celiac or Fibromyalgia or any of the other things that we live with every day that you can’t see on the surface.

Cheers.

Oct 19 '14
empoweringpts9:

My #handwriting was sooooo shaky from just walking in… Here goes… I made it to 20 years, and counting, w/severe #crohns #disease #becauseisaidiwould #promiseskept #IBD #fighter #keepfighting #autoimmunediseases #chronicillnesses #carpediem #ibdcommunity #ibdfamily #weneedacure

empoweringpts9:

My #handwriting was sooooo shaky from just walking in… Here goes… I made it to 20 years, and counting, w/severe #crohns #disease #becauseisaidiwould #promiseskept #IBD #fighter #keepfighting #autoimmunediseases #chronicillnesses #carpediem #ibdcommunity #ibdfamily #weneedacure

Oct 18 '14
Tags: obesity
Oct 18 '14
notjustanotherbrunette:

#lupus #lupusawareness #stillfindinghairs

notjustanotherbrunette:

#lupus #lupusawareness #stillfindinghairs

Oct 17 '14
Oct 17 '14

he-not-she—ftm:

not everything gets better
not everyone understands
not all doctors care
not every medication helps

don’t say they do

you’re either 
lying
ignorant
or deluded

I was sick ten years ago
and unless there’s a miraculously speedy breakthrough
I will be sick ten years from now

Oct 17 '14